Privacy

Penthos Inc (Penthos) is committed to protecting your privacy and complying with the Privacy Act 1988 (Cth) (Privacy Act) and other relevant state laws in relation to the management of personal information. This Privacy Policy describes our policies and procedures on the collection, holding, use and disclosure of your personal information and should be read together with our Terms of Use. 

What is personal information?

When used in this Policy, "personal information" has the meaning given in the Privacy Act. Generally, it means any information or an opinion that could be used to identify you.
 

How do we collect personal information?

We may collect your personal information if you:

  • deal with us directly over the phone or via our support service;

  • have contact with us in person;

  • interact with us online, including through our websites, and social media channels such as Facebook, Twitter, YouTube, Instagram and LinkedIn – these social media channels will also handle your personal information for their own purposes and have their own privacy policies;

  • donated to another organisation and have consented to receiving information from like-minded organisations such as Penthos; and

  • apply for a position with us, either as an employee, volunteer or as a contractor.

This collection may be required to allow you to:

  • join our websites as a member;

  • make a donation;

  • receive information from us;

  • apply to hold a fundraising event;

  • register as a Penthos member;

  • register as a volunteer;

  • receive information about or become involved in our programs, campaigns or other initiatives; and

  • work with us.

Collecting personal information through our website

In some cases, we may also collect your personal information through the use of cookies. When you access some of our websites, we may send a “cookie” (which is a small summary file containing a unique ID number) to your computer. This enables us to recognise your computer and whether you have already registered and greet you each time you visit our website. It also enables us to keep track of services you view so that, if you consent, we can send you news about those services. We also use cookies to measure traffic and engagement patterns, to determine which areas of our website have been visited and to measure overall, aggregate transaction patterns. We use this to research our website visitor’s habits and what they are looking for and accessing, so that we can continually improve our services. If you do not wish to receive cookies, you can set your browser so that your computer does not accept them.

Our websites use Google Analytics, a service which transmits website traffic data to Google servers in the United States. Our websites and mobile applications also use the following Google Analytics Advertising Features:

  • Remarketing and Impression Reporting; and

  • Demographics and Interest Reporting.

Google Analytics does not identify individual users or associate your IP address with any other data held by Google. We use reports provided by Google Analytics to help us understand website traffic and webpage usage in order to improve our services. 

By using our website, you consent to the processing of data about you by Google in the manner described in Google's Privacy Policy and for the purposes set out above. You can opt out of Google Analytics if you disable or refuse the cookie, disable JavaScript, or use the opt-out service provided by Google.

Our website uses marketing automation tools that send emails using a number of different services. Each service uses tracking technologies primarily to understand what subjects are interesting to you by monitoring whether their emails are opened and links are followed. This information is then used to improve the emails that are sent to you and to improve the services that are offered to you.
 

What personal information do we collect?

We collect the personal information which you tell us. This may include your name, address, age or date of birth, telephone number, workplace details, email address or the amount you have donated. In some cases, with your consent (for example, if you apply to register as a patient), we may also collect health information about you, such as your medical history and name of referring doctor. 

If you make a donation to us, you may also provide credit card details and other information which will allow us to process your request and make the transaction.

We may also request:

  • your preferences for receiving further information about our programs, campaigns or activities;

  • additional types of personal information such as title, department name, company information or marketing spend; and

  • demographic information and unique identifiers in order to provide you with a more personalised experience or to verify your passwords.

The choice of how much information you provide to us is yours, but if you want to register as a member of our website, order printed resources, make a donation, or otherwise participate in our programs and events, we require certain information from you in order to provide those services.

Where possible, you have the option of interacting with us anonymously or using a pseudonym if you feel more comfortable dealing with us that way. For example, if you contact us by telephone with a general question we will not ask for your full name unless we need it to answer your question.

Wherever possible, we will try to collect personal information from you directly, rather than from another person or source, unless it is unreasonable or impractical to do so.

If you want to share a story about another person’s experience of grief and loss, in which that person will be identifiable, you must seek permission from the individual or next of kin first and let them know about our Privacy Policy. Some people may not want their experience made public. It is important to consider the impact and respect the wishes of others affected by the same story as you.
 

How does Penthos use your personal information?

The personal information you provide to us may be used by us for the following purposes:

  • to allow you to obtain access to the interactive elements of our website;

  • to provide you with the information, resources or merchandise you have requested;

  • to involve you in programs, campaigns, research, activities or other initiatives undertaken by Penthos;

  • to show your name and the amount of any donation or sponsorship you may make on our website (unless you choose a private or anonymous donation);

  • for the marketing and research purposes of Penthos, its contractors or service providers;

  • for internal administrative purposes;

  • to update our records and keep your contact details up to date;

  • for research, advice and information, including for benchmarking purposes;

  • to send you emails about our programs, campaigns or activities if you have agreed to receive our emails (you will be provided with an opportunity in each email to decline to receive any further emails from us by unsubscribing – if you are a registered as a member of our websites, you can also edit your email preferences via your member account);

  • in the case of marketing automation, to improve the emails that are sent to you and to improve the services that are offered to you;

  • to enable like-minded organisations to contact you with information that may be of interest to you (if you have consented to this);

  • to assess any application from you to work with us; and

  • if you lodge a complaint with us, to process and respond to your complaint.

Regardless of where in the world you reside, Penthos may transfer your data to Australia and process and store it there.

Other than for the purposes described above, we will not use your personal information without your prior consent.
 

Security of your personal information

We take reasonable steps to ensure the security of all information we collect, including that the information is protected from misuse and loss and from unauthorised access, modification or disclosure. For example, your personal information is maintained in a secure environment, which can be accessed only by authorised personnel. However, no data transmission over the internet or information stored on servers accessible through the internet can be guaranteed to be fully secure. 

In addition, we take reasonable steps to destroy or de-identify your personal information once we no longer need it.
 

Disclosure of personal information

Personal information will only be disclosed to third parties in accordance with this Privacy Policy. Information may be provided to third parties where services relating to the purpose for which the personal information is collected are outsourced or you would reasonably expect us to disclose it to a third party for a particular purpose. For example, we may disclose your personal information to our:

  • service providers that host our website servers;

  • marketing service providers; and

  • professional advisors (such as accountants, auditors and lawyers).

We may also disclose your personal information if:

  • you have consented to the disclosure;

  • where disclosure is necessary to prevent injury to life or health; or

  • it is required or authorised by or under an Australian law or a court/tribunal order.

We only disclose your health information for the purposes for which you gave it to us or for a directly related purpose you would reasonably expect or if you agree.

We do not directly disclose personal information to recipients located overseas.
 

Accessing and correcting personal information  

You may request access to your personal information collected by us, and ask that we correct that personal information. You can ask for access or correction by contacting us and we will usually respond within 30 days. If we refuse to give you access to, or correct, your personal information, we will notify you in writing setting out the reasons.
 

Complaints about your privacy

If you believe your privacy has been breached or you have a complaint about how we have handled your personal information, please contact us in writing.  We will respond within a reasonable period (usually within 30 days).

If you are not satisfied with our response, then you may lodge a formal complaint with the Office of the Australian Information Commissioner (for more information, please see www.oaic.gov.au).
 

Changes to this Privacy Policy

This Privacy Policy may change from time to time. Any updated versions of this Privacy Policy will be posted on our websites and will be effective from the date of posting.  

This Policy was last updated in August 2018.
 

Meanings

References to “Penthos”, "we", "us" and "our" are references to Penthos Inc ACN. 64 793 981 936
 

How to contact us

Email
privacy@penthos.org.au

Post
Penthos
Attn: The Privacy Officer
Suite 202,
135 Macquarie Street
Sydney NSW 2000